Consumers continue to be frustrated with lack of access to their healthcare data, even as wearables and other consumer-targeted devices and services continue to sprout. Recently, ONC launched a Consumer Health Data Aggregator Challenge to spur the development of new applications and partnerships to provide aggregated health data to patients. While the financial “prize” for this effort is meager, recognition by ONC might be the real brass ring. This challenge focuses on the use of FHIR exclusively to support interoperability between systems and present data to consumers. I suspect that applicants will have some trouble meeting the requirements of the challenge effectively, and this is indicative of the broader challenge in supporting this type of data access.
In September 2015 ONC released a new report based on the activities of the HIE Personal Health Record (PHR) Community of Practice. The information is interesting and relevant to IIS as they contemplate patient/consumer access to their systems.
HLN has also done some work in this area (see bottom of this page).